Thursday 19 December 2013

Monosodium Glutamate (MSG)

It's been a while since my last write up, and also a while before my last attack. Managed to make it to 10 months before 2 attacks came back to back. I've learnt a lot though. 

I've been lucky enough to have gone through a long period of time without an attack, partly because of extra nutrition from eating more unprocessed foods/less restaurant foods and partly because I've been consuming a combination of Vitamin C, D and Magnesium supplements, really helped.

However, recently, we went to a restaurant which we have not visited in a very long time. Food was very tasty but the after effects were not, 3 hours later - an attack awaited me. As I started to realise - all this while, it had to have been MSG. Very dry mouth, locking of muscles, pain and numbness in the limbs and the all to common nystagmus. So as I have learnt in the past, keep the fluids in, and eat as best as I can. It worked, recovered from the attack within 24 hours although the brain fog persisted for another 3 days.

Lesson learnt ? Here's the proof. A week after, as I've only just gotten better from the attack, we decided a packet of frozen Gyoza was a good idea. After all, the label said "No MSG". An attacked followed, but this time it was rather mild. But off to bed I went. The next day, the same, had more Gyoza, and a rather large attack followed. My suspicion grew - only because in the past, I had suspected MSG was the trigger and the packet clearly labelled No MSG did I miss the signs. Closer look at the ingredients "Hydrolyzed Vegetable Protein", code name for naturally occurring amino acids, Glutamates exposed by breaking cell walls. Seem to me a crime that someone could label something No MSG when it contains basically MSG in lesser concentrations. Misleading maybe but dangerous to people who have a clear allergy.

It' has been 2 weeks since the last attack now, and I am still anxious. However, it has been great to know that Magnesium and the two vitamin supplements, seems to have helped my symptoms, a lot. In fact, to know, that it has been in fact MSG has helped put many questions together.

Why has Vitamin C helped so much ? Research shows that it reduces the damage MSG does to your brain cells.[1]
Why has Vitamin D helped ? Had low Vitamin D levels
Why has Magnesium helped ? Some claims to protect against harmful effects of MSG [2] Don't know but it helps me personally.
What to do when attack happens ? Drink as much fluids to clear the MSG out of the body.
What is MSG ? An chemical excitotoxin, flavour enhancer, used in an incredibly wide range of foods, misleading labels.

May you feel healthy.

1. http://www.ncbi.nlm.nih.gov/pubmed/19507646
2. http://www.truthinlabeling.org/NAET.html

Sunday 12 May 2013

The case for magnesium and the effects of diuretics

One of the many complaints people with Meniere's asks recently, has more to do with Magnesium deficiency, than the disease itself. Of course, there is no way for me to tell for sure. But the questions always goes like this.

I have constant muscular cramps, and I have random muscle pains. I'm feeling anxious and depressed with these constant symptoms, and am taking antidepressants for it. The diuretics are heling for now but I can't live without them. I'm scared.

Well, this sounds typical, and it includes myself (anxiety, fear). The common response, is..

I've been taking diuretics for my symptoms. 

It pains me to read this. That's compounding the problem isn't it ? If I had cramps, and myalgia symptoms, including, the last thing I should do is to be taking more diuretics and anti-depressants. Chemical diuretics tend to drain the body of salts, including that of Magnesium, Potassium which would further result in pain and stress in a situation like this.

Here lies the problem. Since Meniere's technically is a disease that no one yet know how to cure, and there is no single cause for the problem, it would make sense that the associated symptoms be observed carefully. If I was getting Meniere's symptoms, together with constant cramps, insomnia, anxiety - I would be rightfully staying away from the shorter cure symptoms of flooding myself with mineral draining chemicals, and see if I could be balancing my nutrients back together.

Whilst you have read this far, please take the time to try something. Search medical journals, and look into the role of anti-depressants and it's effects on Magnesium levels in the body.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198864/ Something like this, and there are more.

In the case, someone is clearly displaying signs of Magnesium deficiency, I would be likened to have myself checked for it's deficiency, yet, so many with this disease, cannot see the barrel that has rolled down the hill, continue to flood themselves with more diuretics, more anti-depressants to further deplete themselves to the oblivion. It is beyond comprehension.

On another note, there is a saying - you cannot create something out of nothing. Well well, nuclear physics have of course proved us wrong on that note. Energy can create something, theoretically. But people forget in such simple terms that there are no nuclear reactors in plants. It's a solar receiver, that pulls energy from the sun and joins together with water, carbon, nitrogen to form cellulose and other fibres. In some places, the soil is rich in Magnesium, and plants that require Magnesium are able to pull this from the ground - and bind these chemically for our nutrition.

Yet you constantly hear the same story - you can get Magnesium from beans, herbs, pumpkins. One thing I know, they grow, and easily with little Magnesium from the soil. Most of Australian soil is low in Magnesium,  you can't expect these plants to suddenly create it's own source of Magnesium. We're a nation full of sandstone.

I might add, you'd be lucky if much of your green vegetables are grown in decent well composted soil, as opposed to glyphosated dead earth starved of nutrients. Maybe, most of them are grown in water based hydroponics systems - coupled together with the high stress age we live in, how can this be helpful for someone with low Magnesium ?


Thursday 21 March 2013

Vertical movement

What a revelation it has been slack-lining.  The last time I wrote, I had trouble standing up on the line. It has been interesting, now I can walk up and down 20m on the line on a good day. On a bad day, I can't stand on it at all. But that is no surprise given the disease we have. 

During the one attack (yes, I've had one attack since), it was interesting to note that despite quite severe nystagmus, I was able to move myself to a place to rest, and not succumb to nausea. As you all know when a vertigo attack hits, that the motion sickness itself is the one that becomes completely debilitating. Well, I am glad to say that it really helped with tolerance against nystagmus. 

Lately I have been experimenting with various motions on the slack-line. And it is becoming quite clear now that it is the slow moving vertical movement that triggers nausea. Even small amounts of slow constant movement on the vertical axis, will send me feeling nauseas. This makes sense, some of my worst triggers are all vertically based. So my exercise now on the slack-line is to concentrate on bopping up and down the line, as opposed to walking on it constantly. This really triggers the sickness, but I have noticed one of the enormous strengths gained is the ability to abandon thoughts, and concentrate on the gaze, calm the mind and calm the breath. And there it is, breath to the gaze.

During nystagmus, if you are able to maintain your gaze perfectly and concentrate, then the nausea begins to settle. The dizziness fails to take over and control somewhat returns - well it does for me. I am able to get to a safe place, and rest until the attack is over, for now. And this is one of the very ability I saw when I mentioned before, the guy who has had nystagmus all his life, that he was able to momentarily focus and gaze on a subject, walk about otherwise, without feeling sick. And I believe the key here to that adaptation is through the calmness of the breath, as opposed to hate and anxiety.

I believe, in time, we can do it too !

Lately I have noticed many people are beginning to think of this disease in terms of neuro-plasticity. I am glad to hear this, because too many of us who suffer this disease seal our fate by reinforcing the anxiety, and that will result in worst attacks. By giving so much hatred and anger to the disease, it begins to take over ones life completely, and really does make it feel worthless, but the understanding of neuro-plasticity really provides a way of knowing we can make what's left of our balance, and relearn how to adapt to things we cannot change. Maybe, with any luck, we can make a change and rewire our vestibular brain!

May you find your balance..... 


Friday 8 February 2013

Increased vitamin D

Vitamin D update

My 5000IU doses of Vitamin D arrived, and I started taking it promptly. The good news is that it made me feel better, stronger - like I've had 2 shots of fresh brewed coffee without the jitters. The bad news is, I still had slightly dizzy attacks early on after increasing my dosage. I'm unclear if the effects of vitamin D will make any immediate difference to my vestibular health, or does it take longer to take effect. One thing it did make me feel however, is a hell of a lot more energetic, aware - alert.  I guess what I can report on is that if you are in fact low on Vitamin D, and that has become your norm, then this is going to wake you up from your hiatus! Within a few days, my power endurance activity increased significantly.

I'm also sleeping better, and that is not normal for me.

New therapy?


At the same time, I've also started doing something incredibly unlikely, slack-lining.




Apparently, when a new activity is used adopted by the brain, it is able to increase it's size and connectivity by multiple folds within a week. I have also heard numbers of 50% within a day given the right stimulation. I suppose the difference is willingness. 

This little 2 inch wide bit of tape has been my ticket. Incredibly rubbish at slack-lining  I found myself frustratingly bad at even standing on the line for a split second. But this has been incredible therapy, and so much fun at it. I could have sworn the temporal bone behind my ears experienced pressure and pain the first few sessions. Previously I have practised awareness towards sound, however, I started to realise it wasn't sensitivity to sound that I had to increase awareness, it was spatial and balance, so I decided to give this a try.



The first few sessions, was about relaxing and one interesting trait I noted off the eye. I found it very difficult to stare at the one spot, with random and constant shifting of a point of concentration despite my greatest efforts. It's not as if my attention moved away, but the focus of my eye would not stay. However increasingly with this practise, I became more fixated on a point, it translated to being able to correct my posture, straighten up and ease into relaxation. Strangely enough, it also helps you ease anxiety. So far so good right ?

I'm still absolutely atrocious given how many tries I have had but I have a feeling this is really something that is going to help me a lot with this disease. Sure beats walking up and down the hallway moving my head left right up and down. And again, ... is therapy meant to be this fun ? 

Wednesday 23 January 2013

Vestibular Migraine

I am definitely sure, that the last lot of attacks I blogged about a few days back, are not considered Meniere's attacks. Typically, in an onset of Meniere's - there is a distinct lost of hearing. The ears are generally full and lasts for a while, days to weeks. There is significant blockage in the ear, until, such time, the hydrops in the middle ear release resulting in vertigo and nausea. 

In this particular case, there was significant soreness in the eyes, before the vertigo started, the ear blockage is insignificant, and there was no hearing loss associated with it, or ear fullness. There is a familiarity, like this has happened before - it develops and then the vertigo arrives - This migraine results in the nausea and feeling like my head is about to explode. 

Which brings me to this question.

There is no question the brain is plastic and ever changing. However, can the brain be wired to manifests a symptom based on one other. In other words - if you had vertigo due to hydrops - can the easy onset of vertigo be created through an alternate pathway, such as through that of migraine? 

If the above is true, what is the function of the brain to achieve such a pathway? Is the vestibular part of the brain closely related to that of anxiety? What kinda of regulation is best to control such behaviour? Perhaps, the use of hearing meditation, or some sort of sound therapy can assist with increasing the blood flow and healing of the vestibular region of the brain. Regardless, I wanted to throw this question out there - and also to share this ...

http://www.livestrong.com/article/307997-vestibular-migraines-diet/


I do feel though many people suggests that Meniere's and vertigo leads to anxiety orders. I would suggest instead of being the result, it may be the cause - or that it works side by side. But I am no neuroscientist. It is just how I feel, my symptoms became severely worst after long series of anxiety and depression. Maybe this is natures own healing path ? 

For those who are triggered by pressure and food. I had a chance to speak with a friend, who happens to be a doctor, and I explained a few triggers, including that of humidity, and pressure. He said that it was most likely due to pressure, and that it is a common feature of migraines. 

Hope this helps, I do feel a lot more lucid now, 4 days after the attack. 


update:
So it has been documented, anxiety can lead to vertigo 
http://www.calmclinic.com/anxiety/signs/vertigo
http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Dizziness_and_vertigo

Monday 21 January 2013

Went without Chlorella, paying the price

For experimental sake, I decided in the last week that I would go without chlorella. We went away for a weekend to an elevated area in the mountains, one of the highest rainfall areas in this region - and it wasn't too long before an attack came - frustratingly ending our holidays short, and no more climbing. 

So here I am after recovering somewhat, wondering what triggered it all. During the celebration of my daughters birthday, I had 2 glasses of champagne, and blueberries by the bucket loads. I remember feeling unable to open one of my eyes, and I thought it could have been allergies. But when I looked into the mirror, my eyes were no longer looking straight, one was again tilted higher than the other. Also, the madness of the weather didn't help - summer was at its craziest, the temperature peaking in the city at a little over 45C and where we were 40C, dropping to a mere 16C at night, followed by 2 cold rainy days.

Is it the vitamin D or the anti-oxidant properties of Chlorella ? Or was it completely placebo ? I remember sitting in the car, having forgotten I have forgone Chlorella - and watching the way I reacted. My head inclined one way to prevent triggering that crazy migraine that comes when the vertigo goes to nausea. Any movements - my breathing becomes short and body spasm, hands become completely numb, pins and needles, legs are uncomfortable, and I can hardly find it in myself to explain how I feel. 

Again, when I got home - I forced myself to drink a bit of water, and a vitamin D tablet. An hour later, woke up and I could sit up again without feeling like throwing up - was even able to eat a little bit. What happened ? 

How can the anxiety attacks and emotional roller coaster in the last 5 years end me in this state of chronic disability ? How can mental disease affect you so badly physically ? Is there a link between anxiety and the vestibular sensory organs or brain area ?

Answers


This is an opportunity for me to reflect back now on the questions asked.

Given how quickly I was able to recover by taking Vitamin D tablets, I think the main component in Chlorella that helped me so much was most likely Vitamin D. Furthermore, I recall during the time of my last big hoohaa around Vitamin D, and sunlight exposure, I was strong, my body was working efficiently when I wasn't feeling unwell, and yet my blood tests came back less than half the Recommended Vitamin D levels.

One of the biggest contributors to the increased difficulty of dealing with this disease is anxiety. Any signs of panic attack sends the body into spasms, and the best way to be in this situation is to remain calm and concentrate on nothing but the touch of my breath. Panic, brings more pain. 

There are numerous people out there with severe nystagmus on a constant basis that go on with their lives. The brain will retune and leave the vestibular organ as the primary source of balance, it can happen, but the best way to allow it to adjust to this new equilibrium, is to begin mindfulness and awareness, and not react, retuning itself to its new normal.

Conclusion

I've had a really good run, and chlorella has been a huge help to me. Be it its anti-oxidant properties or not, it has been time and time again proven for me, without it, I would suffer. Be it placebo or not, if I can believe that I am able to cope with snake oil and rid of my symptoms, then I can learn to accept that I can retrain my brain to not allow the panic attacks to follow through on its course.

But Vitamin D has helped me recover quickly so from here on onwards, I am trialling replacing my daily dose of Chlorella with that of Vitamin D. I am not sure why Vitamin D tablets are not sold in more than 1000IUs in Australia, however, we are a little backwards in Australia, we still advocate covering up and using sunblock uncompromisingly despite the epidemic of Vit D deficiencies, but I have ordered some 5000IU units online to trial for myself. 

Will update as I go.


BTW, a VERY good site on Vitamin D http://vitamindwiki.com/VitaminDWiki

Thursday 3 January 2013

Food group sensitivities

Through the journal, one of the observations that show up was a rough but unreliable association of dizziness with the use of ibuprofen. As it does not happen every time, it was difficult for me to pinpoint the cause to be from foods containing Salicylates. So I wish to share this in more detail.

One of the problems plaguing people with Salicylates sensitivity - is that it can present itself as a collective and accumulative reaction. So, for example, you may be consuming foods high in Salicylates, but may not show up as a reaction, until you consume something else that tipped you over the scales of your tolerance. Yet you may eliminate one food, and others still tip you over the scale.

So by simple means of food elimination, unless you are aware of the food groups - you'd be hard pressed to find why you are reacting suddenly to whatever foods that tipped you over the edge without much consistency. One of these, which is a common cure for headache, is of course, aspirin and ibuprofen.

Hence, I strongly advice, if you are keeping a food journal, to note as much of the foods you have had as possible, not just the trigger, so as to assist you and your doctor in identifying if you have a food sensitivity that may be triggering your symptoms.


Tuesday 1 January 2013

Happy New Ear

Happy new ears to you.

This simple greet puts me in a dilemma, if I had a choice of a new ear and that was my only wish, I don't know for sure if new ears would fix my dizziness issues. In fact, I watched a documentary recently on a patient who suffered intense diarrhoea for a few weeks after a family bbq, then dizziness and nausea, before eventually falling into a coma. Many tests, scans came out negative eventuating at an autoimmune disorder, where an antibody was discovered attacking the central nervous system of the body as a result of the bacteria.

I have always felt like there are other causes to the trigger, it feels as if there is something attacking the back of my head resulting in impairment of normal functionality - perhaps this is showing up in ears as a first sign of attack, or perhaps, it is also showing up in other areas such as restless leg syndrome, Chronic fatigue and other odder behaviours such as joint pain and unexplainable muscular atrophy, tears. Whether it is an auto-immune disorder or not is difficult for me say. So far, blood tests for autoimmune has showed up negative.

But one thing is for sure, I don't feel it is simply a result of a localised issue with my ears. Else, it would not have spread to both ears. This very characteristics tells me that it has to be some sort of serum hormone, brain function or neuro signal disorder, or some sort of reaction to a food that results in the body attacking itself.

The hunt continues...